Here are a few more websites I have found that have good descriptions/diagrams of HLHS and the reconstruction process.
http://www.severinbrenny.com/hlhs.html
Another good diagram
http://www.chop.edu/img/cardiac-center/hlhs-surgery-three-stages.html
A blog of written by a mom with a child who has HLHS
http://simmonsfamilyupdate.blogspot.com/2012/01/owens-story.html
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Stay positive. Be vigilant. Share your love. I am a father of a 10 year old HLHS daughter. She is perfect and wonderful in every way imaginable. Yes, she is the most petite 5th grader...but she has a competitive spirit unmatched as she is currently (as I type this) playing soccer with her brother. Kudos to all who reach deep for faith. Medications, proceedures and medical instruments are improving the hopes of many families. Patrick.
ReplyDeletemckinleypatrick11 at yahoo.com
Enjoy the moment, visit the past, plan for tomorrow.